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Partners in palliatieve care. Integrated advanced care planning with a first contact person.

DANS Data Station Social Sciences and Humanitiesvia DANS Data Stations (via DataCite) · updated 28 August 2026

What's in it

The goal of the research project is first, to improve the quality of advanced care planning, second, to gain insights into the process of implementation of integrated advanced care planning with a first contact person and its impact, and third to improve the interprofessional community of practice between health and social care professionals, citizens and volunteers. The project has a participatory action design. Participants are people who need palliative care, family carers, health and social care professionals, citizens and volunteers. The research process has five phases: Phase 1: Gaining knowledge of the characteristics of people who need palliative care, their care wishes and needs based pm the four dimensions of palliative care. Phase 2: Gaining insights into the formal and informal care arrangements Phase 3: Desiging an integrated advanced care planning with a first contact person. Phase 4: Piloting and implementing the newly-designed integrated advanced care planning with a first contact person. Phase 5: Evaluating the pilot-implementation, quality of care and implementation process. Collaborating partner are: Maastricht …

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