Nivel Corona Cohort: a description of the cohort and methodology used for combining general practice electronic records with patient reported outcomes to study impact of a COVID-19 infection
What's in it
A population-based COVID-19 cohort was set up in the Netherlands to gain comprehensive insight in the short- and long-term effects of COVID-19 in the general population. A subset of this data, deposited and described here, was used for the aims to describe the methodology and infrastructure used to recruit individuals with COVID-19 and the representativeness of the population-based cohort and to characterize the population by description of their symptoms and health care usage during the acute COVID-19 phase. The starting point of the set-up of the cohort was to recruit participants in routinely recorded, general practice electronic health records (EHR) data, which are sent to the Netherlands Institute for Health Services Research Primary Care Database (Nivel-PCD) on a weekly basis. Patients registered with COVID-19 were flagged in the Nivel-PCD based on their COVID-19 diagnoses. Flagged patients were invited for participation by their general practitioner via a trusted third party. Participating patients received a series of four questionnaires over the duration of one year allowing for a combination of data from patient reported outcomes and EHRs. The Nivel …
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